TAILIEUCHUNG - Juvenile Huntington Disease: A Resource for Families, Health Professionals and Caregivers

Funny turns and chest pain – funny turns are an unusual presentation for cardiac disease in children, much more commonly associated with simple faints, or neurological disease such as epilepsy. Sudden collapse may be due to arrhythmias, and collapse with exercise is a very worrying sign in a child with significant left ventricular outflow tract obstruction such as aortic stenosis. Most chest pain in children is due to musculoskeletal problems, especially in older children. Coronary artery abnormalities, and hence chest pain due to angina, is rare. A young infant with angina due to Kawasaki disease or Anomalous origin of the. | Juvenile Huntington Disease A Resource for Families Health Professionals and Caregivers 1 Huntington Society of Canada WUNTINGTON Sociétế Huntington du Canada Table of Contents About Juvenile Huntington Disease I. II. The Genetic Basis of Juvenile III. First IV. Living with Juvenile HD I. II. Physical and Occupational III. Speech IV. V Behaviour and VI. VII. Other Drug VIII. Juvenile HD and Family Later Stages of the Disease I. Leisure and Social II. III. Hope for the Future . 22 Acknowledgements . 22 Juvenile Huntington Disease A Resource for Families Health Professionals and Caregivers Huntington Society of Canada 2000 Huntington Disease Huntington disease HD is a hereditary brain disorder with devastating effects on both mind and body. One in every 1 000 Canadians is touched by HD for example as an affected individual person at risk friend family member or caregiver. One in every 10 000 Canadians has Huntington disease. Every child of a person with HD has a 50 risk of inheriting the disease. The symptoms of HD including uncontrollable jerking movements and profound cognitive and emotional impairment usually begin in the late 30s although HD can occur in children as young as five or in adults in their 70s. Over its lengthy course HD leads to incapacitation and death. HD is a disease of families. No member is left untouched. Children siblings spouses and parents all face the difficult personal and financial decisions of caring for their loved ones. There is still no cure for Huntington s and there are no treatments which can prevent HD or slow it down. However the accelerating pace of research is offering more hope than ever before that a solution will be discovered one day soon. Huntington Society of Canada The Huntington Society of Canada is a national network of volunteers and professionals .

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