TAILIEUCHUNG - Genetic Information And Health Insurance

This effect was less than originally feared, however—in part be- cause earlier expenditures for improving health and education had enduring effects. As a result of this experience, most countries’ adjustment pro- grams today try to rationalize overall government spending while maintaining cost-effective expen- ditures in health and education. Despite these im- provements, much is still to be learned about more efficient ways of carrying out stabilization and ad- justment programs while protecting the poor. Policies to expand schooling are also crucial for promoting health. People who have had more schooling seek and utilize health information more effectively. | GENETIC INFORMATION AND HEALTH INSURANCE Report of the Task Force on Genetic Information and Insurance May 10 1993 NIH-DOE Working Group on Ethical Legal and Social Implications of Human Genome Research DEPARTMENT OF HEALTH AND HUMAN SERVICES Public Health Service National Institutes of Health National Center for Human Genome Research Bethesda Maryland 20892 Building 38A Room 605 301 496 0844 301 402 0837 Fax June 19 1993 The Honorable Donna E. Shalala Secretary of Health and Human Services Washington . 20201 Dear Secretary Shalala On behalf of the . Human Genome Project we are pleased to transmit the report of the NIH-DOE Task Force on Genetic Information and Insurance entitled Genetic Information and Health Insurance. Genetic Information and Health Insurance assesses the potential impact of new advances in human genetics on the current system of health care coverage in the . and makes recommendations for managing that impact within a reformed health care system. The report provides a new argument for implementing a health care system in which access to health services is not constrained by personal risk underwriting. This argument is grounded in the changing scientific face of health care and the increasing medical utility of genetic information concerning individual health risks. As the Human Genome Project proceeds it will be increasingly important to ensure that the health benefits made possible through genetic risk assessments can be realized by individuals and families without endangering their health care coverage. Genetic Information and Health Insurance was prepared at the request of the . Human Genome Project by an independent task force composed of clinical geneticists health policy researchers insurance industry policy analysts and representatives from genetic disease lay organizations. It represents one of the many initiatives under way as part of the Human Genome Project s effort to anticipate and address the ethical legal and social .

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