TAILIEUCHUNG - Parental and staff perspectives of NICU research procedures

There are limited data on parental perception of infant participation in minimal risk and minor increase above minimal risk research focusing on the NICU population. The study objective was to assess parental and NICU staff perceptions concerning minimal risk and minor increase above minimal risk in the NICU setting. | Freibott et al. BMC Pediatrics 2016 16 63 DOI S12887-016-0600-3 BMC Pediatrics RESEARCH ARTICLE Open Access Parental and staff perspectives of NICU research procedures Christina Freibott1 2 Ursula Guillen2 3 Amy Mackley 2 3 and Robert Locke2 3 Abstract Background There are limited data on parental perception of infant participation in minimal risk and minor increase above minimal risk research focusing on the NICU population. The study objective was to assess parental and NICU staff perceptions concerning minimal risk and minor increase above minimal risk in the NICU setting. Methods Parents of infants and NICU staff were presented with a combination of 4 infant scenarios and 5 hypothetical research procedures. These assessed participants willingness to allow their infant to participate in research and their attitude towards obligation to assist future children. Linear and hierarchal linear models analyzed the association and interaction effects on the likelihood to consent to research procedures. Results Sixty parents and 30 NICU staff members were surveyed. Parents acceptability for each of the five research procedures ranged from 31 to 83 . Parent gender age race ethnicity insurance education and history of previous child in the NICU were not associated with the likelihood to consent to the research procedures. Acceptability for each of the five research procedures among NICU staff ranged from 19 to 98 . There were no significant differences between NICU staff s and parents responses for 4 of 5 research procedures. A minority of parents and nurses and 40 respectively compared to a majority of physicians agreed or strongly agreed that parents have a responsibility to involve their children in low risk medical research in order to help future children even if this would not help their own child. Lower agreement with obligation to help future children p and higher education p were associated with a decreased likelihood to consent to .

• Y khoa - Dược
• BMC Pediatrics
• Research regulatory
• Research ethics
• Parental perceptions
• Minor increase
• Acute otitis media
• Primary care pediatrics
• Pneumatic otoscope
• Educational programmes concerning
• National Institutes of Health
• Pediatric integrative medicine
• Healthcare professionals
• Alternative medicine
• Lumbar puncture
• Early onset neonatal sepsis
• American Academy of Pediatrics
• Group B Streptococcus
• 9 Kids’ Inpatient Database
• Public health
• Tasmanian Law Reform Institute
• Non therapeutic circumcision
• Long QT syndrome
• Standing test
• Pediatric emergency department
• Ventricular arrhythmias
• Acute respiratory infection
• Under five years
• Death especially
• Binary logistic regression analysis
• Pediatrics mortality
• Emergency department
• Tikur Anbessa Specialized Tertiary Hosptal
• Neonatal intensive care unit
• RV infection
• Pediatrics guidelines criteria
• Gynecology hospitals
• Demographic data collection
• Electronic health record
• Health care organizations
• Screen viewing
• Psychological wellbeing
• Moderate to vigorous intensity physical activity
• Child abuse pediatrics
• Social risk indicators
• Non social cues
• CAP risk perception
• Not included in the title
• Quality of health care
• Patient satisfaction
• Emergency medical services
• Isolated unilateral temporalis muscle hypertrophy
• IUTMH in pediatrics
• Masticatory muscle hypertrophies
• Visual disturbances
• Pediatrics antiretroviral market
• Pediatric antiretroviral prices
• Global Price Reporting Mechanism
• Price trends
• Pediatric antiretroviral procurement
• Hospitalized children
• Antimicrobial stewardship
• Prescribing antimicrobials
• Discontinuing empiric antimicrobials
• Pediatric tumors
• Infantile orbital tumors
• Isolated enophthalmos
• Orbital tumors
• Care seeking behavior
• Traditional medicine
• National Hospital of Pediatrics
• Neonatal jaundice
• Transcutaneous bilirubin
• Neonatal hyperbilirubinemia
• Especially kernicterus
• Parental decisions regarding immunization
• Knowledge practices
• Immunization rate
• Knowledge practice
• Factors underlying inadequate
• Unvaccinated children
• Epileptic attack
• School absenteeism
• Childhood epilepsy
• Epilepsy in Ethiopia
• Social media
• Infant care
• Anticipatory guidance
• Preschool teachers
• Knowledge retention
• Pediatric first aid
• Ulcerative colitis
• Inflammatory bowel diseases
• Childhood onset Crohn’s disease
• Histopathological examination
• Intestinal spirochetosis
• Brachyspira aalborgi
• Brachyspira pilosicoli
• Inflammatory bowel disease