TAILIEUCHUNG - SICKLE CELL DISEASE IN CHILDREN AND ADOLESCENTS: DIAGNOSIS, GUIDELINES FOR COMPREHENSIVE CARE, AND PROTOCOLS FOR MANAGEMENT OF ACUTE AND CHRONIC COMPLICATIONS©

The first, most conventional way to characterize the global health picture is a description of health and disease. Today, the overall picture for child health and maternal health in poor countries is worrisome indeed. While child mortality has steadily declined in the last two decades, still approximately million children under the age of five die each year. Progress on key indicators is slowing, and in parts of Sub-Saharan Africa, child mortality is on the rise. The great bulk of the mortality decline since the 1970s is attributable to reduction in deaths. | SICKLE CELL DISEASE IN CHILDREN AND ADOLESCENTS DIAGNOSIS GUIDELINES FOR COMPREHENSIVE CARE AND PROTOCOLS FOR MANAGEMENT OF ACUTE AND CHRONIC COMPLICATIONS Mid-Atlantic Sickle Cell Disease Consortium MASCC Practice Guidelines Workgroup sponsored by the Mid-Atlantic Regional Human Genetics Network MARHGN This document represents a consensus with regard to standards of and expectations for comprehensive care for infants children and adolescents with sickle cell disease. Pediatric hematologists nurses and other health care professionals with expertise in the medical management of children with sickle cell disease from the Mid-Atlantic region representing Delaware the District of Columbia Maryland New Jersey Pennsylvania Virginia and West Virginia developed this set of guidelines. This group met several times from September 1998 through January 2001. These standards and expectations assume both the professional expertise and clinical facilities necessary to provide this level of care. It is strongly recommended that patients with sickle cell disease who are acutely ill be evaluated and treated at a comprehensive sickle cell disease center. Terri Armstrong RN Cassandra Barnette PNP Louis Bartoshesky MD MPH Nancy Bauer PhD Tom Brunner FNP Jamie Cappuccino RN CNS Lolita Carter PNP James Casella MD Renee Cecil RN Mahboubeh Dadash-Zaden MD Carlton Dampier Richard Drachtman MD Catherine Driscoll MD Collette Driscoll RN Elizabeth Ely RN PhD Karin Eshleman PNP Allen Eskenazi MD Joan Fisher MD PhD Frances Flug MD Terri Forsyth RN Catherine Freer MS CPNP Karen Gee RN Miriam Gilday PNP Jay Greenberg MD Neil Grossman MD Sriya Gunawardena MD Anne Hurlet MD Brenda Ingram RN Jacqueline Ioli CRNP Peri Kamalakar MD Frank Keller MD St. Christopher s Hospital for Children Children s Hospital of New Jersey at Newark Christiana Hospital St. Christopher s Hospital for Children Medical College of Virginia Saint Barnabas Medical Center Children s Hospital of Philadelphia Johns Hopkins .

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