TAILIEUCHUNG - Health and Quality of Life Outcomes BioMed Central Research Open Access Coping, quality of life,
Health and Quality of Life Outcomes BioMed Central Research Open Access Coping, quality of life, and hope in adults with primary antibody deficiencies Hanne Marie Høybråten Sigstad1,2, Asbjørg Stray-Pedersen*1,3 and Stig S Frøland4 Address: 1Centre for Rare Disorders, Rikshospitalet University Hospital, Oslo, Norway, 2The Department of Special Needs Education, University of Oslo, Oslo, Norway, 3Department of Medical Genetics, Rikshospitalet University Hospital, Oslo, Norway and 4Section of Clinical Immunology and Infectious Diseases, Department of Medicine, Rikshospitalet University Hospital, Oslo, Norway Email: Hanne Marie Høybråten Sigstad - ; Asbjørg Stray-Pedersen* - ; Stig S Frøland - * Corresponding author Published: 04 May 2005 Health and Quality of Life. | BioMed Central Health and Quality of Life Outcomes Research Open Access Coping quality of life and hope in adults with primary antibody deficiencies Hanne Marie Hoybrâten Sigstad1 2 Asbjorg Stray-Pedersen 1 3 and Stig S Froland4 Address 1Centre for Rare Disorders Rikshospitalet University Hospital Oslo Norway 2The Department of Special Needs Education University of Oslo Oslo Norway 3Department of Medical Genetics Rikshospitalet University Hospital Oslo Norway and 4Section of Clinical Immunology and Infectious Diseases Department of Medicine Rikshospitalet University Hospital Oslo Norway Email Hanne Marie Hoybrâten Sigstad - Asbjorg Stray-Pedersen - Stig S Froland - Corresponding author Published 04 May 2005 Received 26 January 2005 Health and Quality of Life Outcomes 2005 3 31 doi 1477-7525-3- Accepted 04 May 2005 31 This article is available from http content 3 1 3 1 2005 Sigstad et al licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License http licenses by which permits unrestricted use distribution and reproduction in any medium provided the original work is properly cited. Abstract Background Living with a chronic disease such as primary antibody deficiency will often have consequences for quality of life. Previous quality-of-life studies in primary antibody deficiency patients have been limited to different treatment methods. We wanted to study how adults with primary antibody deficiencies manage their conditions and to identify factors that are conducive to coping good quality of life and hope. Methods Questionnaires were sent to all patients 20 years of age with primary antibody deficiencies who were served by Rikshospitalet University Hospital. The questionnaires consisted of several standardized scales Ferrans and .
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