TAILIEUCHUNG - Parenting Stress in Mothers of Children with Congenital Heart Disease

Crohn’s disease (CD) and ulcerative colitis are chronic inflammatory intestinal disorders affecting million people in North America. Recent studies have shown an increasing incidence of CD in children, and an overall prevalence of 10% to 25% of all patients with inflammatory bowel disease (IBD). 2,3 CD is characterized by patchy transmural inflammation involving any segment of the gastrointestinal tract from the mouth to the anus. Patients will typically show recurrent clinical exacerbations marked by symptoms of abdominal pain, diarrhea, and rectal bleeding, alternating with episodes of quiescent disease. Children often manifest constitutional signs of weight loss, growth failure and pubertal. | ORIGINAL ARTICLE I__ Parenting Stress in Mothers of Children with Congenital Heart Disease Sunhee Lee1 RN MSN Ji-Soo Yoo2 RN PhD Il-Young Yoo2 RN PhD 1PhD Candidate College of Nursing Yonsei University Seoul Korea 2Professor College of Nursing Yonsei University Seoul Korea Purpose The main purposes of this study were to examine the relationships among uncertainty social support and parenting stress in mothers of children with congenital heart disease CHD and to identify the factors related to parenting stress. Methods This was a survey study using a questionnaire. Fifty-one mothers of children with CHD were recruited at the pediatric cardiac outpatient clinic at one university-affiliated hospital in Seoul between July 14th and September 25th 2006. Abidin s Parenting Stress Index-Short Form Mishel s Parents Perception Uncertainty in Illness Scale and Brandt and Weinert s Personal Resource Questionnaire were used to collect data. Results The results of bivariate analysis showed that parenting stress was significantly related to social support ambiguity lack of clarity and lack of information but was not related to unpredictability one of the subconcepts of uncertainty. Multiple regression analysis showed that parenting stress was significantly related to social support and Internet information. Conclusion Mothers who reported they had more social support and less uncertainty showed lower parenting stress. Also the Internet could be an effective method to obtain information and to share child-rearing experiences with other mothers of children with CHD. Asian Nursing Research 2007 1 2 116-124 Key Words congenital heart disease parenting stress uncertainty INTRODUCTION Approximately 2-3 of 1000 infants are born with congenital heart disease CHD in Korea Lee Kim Jung Kim Choi 2001 . As a result of dramatic advances in the medical and surgical management of CHD 85 of infants with CHD are now expected to survive to adulthood and CHD is regarded as a .

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