Đang chuẩn bị nút TẢI XUỐNG, xin hãy chờ
Tải xuống
Health and Quality of Life Outcomes BioMed Central Commentary Open Access Evaluation of support groups for women with breast cancer: importance of the navigator role James E Till* Address: Department of Medical Biophysics and Joint Centre for Bioethics, University of Toronto, and Ontario Cancer Institute, University Health Network, Toronto, Ontario, M5G 2M9, Canada Email: James E Till* - till@uhnres.utoronto.ca * Corresponding author Published: 1 May 2003 Health and Quality of Life Outcomes 2003, 1:16 This article is available from: http://www.hqlo.com/content/1/1/16 Received: 18 March 2003 Accepted: 1 May 2003 © 2003 Till; licensee BioMed Central Ltd. This is an Open Access article: verbatim copying and redistribution of this article are. | BioMed Central Health and Quality of Life Outcomes Commentary Open Access Evaluation of support groups for women with breast cancer importance of the navigator role James E Till Address Department of Medical Biophysics and Joint Centre for Bioethics University of Toronto and Ontario Cancer Institute University Health Network Toronto Ontario M5G 2M9 Canada Email James E Till - till@uhnres.utoronto.ca Corresponding author Published I May 2003 Received 18 March 2003 Accepted 1 May 2003 Health and Quality of Life Outcomes 2003 1 16 This article is available from http www.hqlo.cOm content 1 1 16 2003 Till licensee BioMed Central Ltd. This is an Open Access article verbatim copying and redistribution of this article are permitted in all media for any purpose provided this notice is preserved along with the article s original URL. Abstract Background At least some forms of breast cancer are increasingly being viewed as a chronic illness where an emphasis is placed on meeting the various ongoing needs of people living with cancer their families and other members of their social support networks. This commentary outlines some approaches to the evaluation of cancer-related support groups with a particular emphasis on those designed to provide long-distance support via the internet for women with breast cancer. Discussion The literature on evaluations of community-based cancer support groups indicates that they offer a number of benefits and that it is more reasonable to expect an impact of such interventions on psychosocial functioning and or health-related quality of life than on survival. The literature on both face-to-face and online social support groups suggests that they offer many advantages although evaluation of the latter delivery mechanism presents some ethical issues that need to be addressed. Many popular online support groups are peer-moderated rather than professionally-moderated. In an evaluation of online support groups different models of the role of the .
