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Health and Quality of Life Outcomes BioMed Central Review Open Access Needs Assessment for cancer patients and their families Kuang-Yi Wen* and David H Gustafson Address: Center for Health Systems Research and Analysis, University of Wisconsin, 1107 WARF, 610 Walnut Street, Madison, WI53726, USA Email: Kuang-Yi Wen* - kuangyi@chsra.wisc.edu; David H Gustafson - dhgustaf@facstaff.wisc.edu * Corresponding author Published: 26 February 2004 Health and Quality of Life Outcomes 2004, 2:11 This article is available from: http://www.hqlo.com/content/2/1/11 Received: 01 August 2003 Accepted: 26 February 2004 © 2004 Wen and Gustafson; licensee BioMed Central Ltd. This is an Open Access article: verbatim copying and redistribution of this article are permitted in all. | BioMed Central Health and Quality of Life Outcomes Review Needs Assessment for cancer patients and their families Kuang-Yi Wen and David H Gustafson Open Access Address Center for Health Systems Research and Analysis University of Wisconsin 1107 WARF 610 Walnut Street Madison WI53726 USA Email Kuang-Yi Wen - kuangyi@chsra.wisc.edu David H Gustafson - dhgustaf@facstaff.wisc.edu Corresponding author Published 26 February 2004 Received 01 August 2003 Accepted 26 February 2004 Health and Quality of Life Outcomes 2004 2 11 This article is available from http www.hqlo.com content 2 l l I 2004 Wen and Gustafson licensee BioMed Central Ltd. This is an Open Access article verbatim copying and redistribution of this article are permitted in all media for any purpose provided this notice is preserved along with the article s original URL. Abstract Background The assessment of needs for cancer care is a critical step in providing high quality care and achieving cancer patients and families satisfaction. Instruments can be used to assess needs and guide cancer care planning. This study discusses the importance of the needs assessment relationships between needs satisfaction and quality of life and reviews the assessment instruments of needs experienced by cancer patients and their families. Methods A systematic search was conducted in MEDLINE and CANCERLIT data bases. Instruments were evaluated based on their conceptual and measurement models as well as their demonstrated reliability and validity. The authors also sought information pertaining to instruments burden of administration and responsiveness. Measures compromised by a lack of published psychometric description were not included. Results This search identified 17 patient needs assessment instruments and seven family needs assessment instruments. The development and psychometric proprieties of most of these instruments were well documented. However data on their responsiveness and burden of administration were scarce. .