TAILIEUCHUNG - Báo cáo y học: "The lived experience of fibromyalgia in female patients, a phenomenological study"

Tuyển tập các báo cáo nghiên cứu về y học được đăng trên tạp chí y học Critical Care giúp cho các bạn có thêm kiến thức về ngành y học đề tài: The lived experience of fibromyalgia in female patients, a phenomenological study. | Wuytack and Miller Chiropractic Manual Therapies 2011 19 22 http content 19 1 22 CHIROPRACTIC MANUAL THERAPIES RESEARCH Open Access The lived experience of fibromyalgia in female patients a phenomenological study Francesca Wuytack and Peter Miller Abstract Background Fibromyalgia is a chronic syndrome with no cure. A thorough understanding of the illness experience is therefore key in the palliative care of patients with this condition. In search for supportive treatments fibromyalgia patients often attend a chiropractor or other manual therapist. Knowledge of the meaning and reality of living with this condition to the patient could be considered essential to any health care practitioner playing a role in the management. This study aimed to gain a better understanding of the subjective experience of fibromyalgia focusing on the personal occupational and social impact of the condition on patients lives. This included exploring the patients views about the future. Methods This study employed descriptive phenomenology and adopted Husserl s concept of transcendental subjectivity or bracketing . This qualitative study involved semi-structured interviews and was undertaken to obtain rich data that reflected the essence of the participants experience. Participants consisted of six female volunteers diagnosed with fibromyalgia by the University Hospital Gent Belgium. Data were analysed using a thematic framework. Results Fibromyalgia pervaded all aspects of life. Four main themes arose from data analysis namely the impact of fibromyalgia on patients occupational and personal life the impact on their future and aspects of social interaction. Nearly all participants had stopped working giving rise to feelings of uselessness and loss of identity. Leisure activities were also greatly affected. Fibromyalgia was said to alter family bonds some of which were reinforced others were broken. The diagnosis was seen as a relief marking an end to a period of uncertainty. .

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